A trial participants journey

5 March 2019

My story started with a routine mammogram in 2011 that picked up cancer tumours in my right breast.  The tumours were removed as were 35 lymph nodes from my right armpit. I came through the chemotherapy and radiotherapy treatment reasonably unscathed and felt like I had dodged a bullet.

It wasn’t until 5 ½ years later that I developed lymphoedema. My right arm had swelled up five times the size of my left arm.  The main treatment available to me is to wear a compression sleeve 24 hours a day for the rest of my life.  Wearing the sleeve over the hot summer has been uncomfortable to say the least.  Random people ask me what happened to my arm so I tell them I was bitten by a snake.  That usually shuts them up. Last winter my long sleeved tops would fit my left arm but not the right which caused a wardrobe nightmare.

I heard about the lymph node grafting trial and was eager to be part of it.  I was accepted as a participant and had the minor surgical procedure.  18 months later the swelling in my arm has reduced by two thirds and I now fit my clothes again.  If the outcome for me is that I can stop wearing the compression sleeve then I will be forever grateful for this opportunity.

I would highly recommend the lymph node grafting trial to other women with lymphedema, as it has given me hope for a normal future.