The Waikato Breast Cancer Research Trust (WBCRT) runs the Waikato Breast Cancer Register, a computerised database. It was established in 2005 with the intention of creating a population based picture of breast cancer care in the Waikato District Health Board region.
The register records detailed information about diagnosis, treatment and outcomes of patients with breast cancer, which allows the medical community to monitor standards of care in the Waikato and benchmark against national and international treatment standards.
This confidential database also allows multidisciplinary research into the many aspects of the breast cancer position in the Waikato and New Zealand.
WBCRT collaborates with the Auckland, Wellington and Christchurch regional Breast Cancer Registers with observational studies and projects.
In September 2017, we transitioned to a web-based New Zealand Breast Cancer Register. This extensive database enables other regions to collaborate in defining the true incidence and nature of breast cancer; enabling the review of current patterns of care; and looks to improve the outcomes for those who experience breast cancer.
The information stored on the register is completely confidential and can only be released through strict governance control. Both public and private sector breast cancer patients, as well as patients with invasive breast cancer and DCIS (ductal carcinoma in situ – a pre-invasive cancer) are eligible to participate in the registers; participation is voluntary.
If you have volunteered to be on the Waikato Breast Cancer Register, you will receive an annual follow up. This enables our team to monitor your diagnosis, any progression of the disease and your treatment.
Requests for data are welcomed. All data released is in a form that does not identify any individuals and is critiqued and approved by the Waikato Breast Cancer Register Executive Group before release. This group consists of senior clinicians from Waikato Hospital covering a range of medical disciplines and provides governance over who can use the data and for what purpose, along with any cost that may be incurred, if any.
The Waikato Breast Cancer Register is proudly supported by